I feel so rested, thanks to Marilyn's night angels pictured right. They had to administer some meds twice during the night. They also told me of some short shallow breathing that i have seen in nights past. It is a cruel reminder of the relentless march of als and its affects on Marilyns body.
Sunday, dispite the mishap, was a good day. Lots of visits and smiles and laughter. Two of Marilyn Sisters came up. Kathy stayed late and played cards with Mare.
Before Mare went to bed she wanted me to read the blog to her. I have not been doing that since the first time i did and she got a little anxious. I told her that i am very honest about what is going on as write. Maybe because she had just had a nice dose of ativan, she told me to bring it on.
So as i read her Saturdays events and brian getting homecoming king, i read the part of me being worried that she would try to hold on til then. She was taken back a bit and said something like, you dont want me to fight? My night angels quickly stepped in to explain to Mare that they understood me to mean that we were giving Mare permission to go not that we wanted her to go. She said, "you know what i'm waiting for? Not brian getting homecoming but brian getting married!"
I'm off to Bham today to get the battey pack for mare. It is also Massage Monday! Not only do they give mare one but me too! Several people have mentioned the possibility of taking some of my previous emails, combined with this blog and some background stuff and writing a book when this is all over. At first i dismissed the idea. Last night i thought well maybe. I'm thinking of calling it Mondays with Marilyn as a take off on Tuesdays with Morrie which is another book about ALS. I would not be the first to do such a project as i have seen many of the same online. But if i could help raise money and awareness to end this ruthless disease, it would be time well spent. My computer crashed so i need all the monthly email updates sent back to my email address. Thanks if you can help with this request. email@example.com
May Mare have a restful and peaceful sleep.