Today was much like yesterday. I went to bed around 330 and left mare with her sister gina. When i got up, gina was still up being the big sister. We had a flurry af acivity here today. Hospice nurse was out a few times to check on mare and deliver new medications. Respiratory delivered more oxygen. Nutrition dropped of feeding tube supplies. the hospice doctor wanted marilyn to consider a pic line (like an iv) in order to administer meds faster. After some hesitation she agreed. Pic lin nurse came out and performed a minor surgery to put it in in our living room. She did not eat at all today. She really did not move except gpa encouraged her to go to bed for the night. She did not want to be alone. Lynn walker was here much of the day and gave her the initial ativan in her pic. Two nurses from st joes, steph and dolores came down and took the night watch to give us a rest.
My family from seattle, Aunt Mona, Aunt Becky, Uncle Gus and my sister Lisa are coming up with dinner. It feels good to be surrounded by family and friends. And especially the skilled nurses who have stepped up to help. That has been huge.
Steph removed mares bipap just for a minute last night. Mare struggled even then to breathe. In all reality, she is on life support now. To stay off the mask would be the end. I made the mistake of putting on facebood if i wondered if this might be it. I have wondered that everyday for the last 6 months. It will now be up to mare and her God how long we have with her. She is for the most part comfortable.
May Mare have a restful and peaceful sleep.