Reading all the comments was so encouraging - knowing that others are out there sharing this with us. Thanks for taking the time to read and post comments.
Mare woke up around 10 today. It was shower day. I'm so glad Gina was here to help me. It really is a two person job. Gina and her family have been here for two weeks. They have been so helpful to me. They leave tomorrow and im going to miss them big time.
By the time she got done and had breakfast the Hospice social worker was here followed by the Hospice nurse. The encouraged Mare to finally complete the Physicians order form that will let any EMS know what mares wishes are in terms of how they are to help her. We have been putting that off for so long. It is finally done :(
Mare stayed on oxygen when she was not sleeping today. It seems to give her comfort and her nurse said that was what it was for. It is so hard to watch her not be able to enjoy normal things.
We are taking a few days just for family. Lauren is leaving for school and i start soon also. Wed - Sun are going to be just family days. Should be good.
ps we watched a video of brian when he was 8 playing tennis tonight. It brought back such good memories. When it is all said and done, that is all we have isn't it?